KU Medical Center Resource Page
Resources for Adults with Down Syndrome and their families for the many needs they may have. Supporting them and allowing them to function at their highest capacity in every area of their lives.
Adults with Down Syndrome Specialty Clinic - KU Medical
This clinic coordinates primary health care for adults with Down Syndrome. This clinic is the only clinic specializing in Down Syndrome in the Midwest. Moya Peterson, Ph.D., APRN sees patients starting at 16 depending on circumstances.
Down Syndrome Connect Registry
National Institutes of Health DS-Connect® is a powerful resource where people with Down syndrome and their families can:
- Connect with researchers and health care providers.
- Express interest in participating in certain clinical studies on Down Syndrome, including studies of new medications and other treatments.
- Take confidential health-related surveys. These surveys are aimed at better understanding of the health of people with Down Syndrome across their lifespans.
Down Syndrome: Health Issues
A web site full of helpful articles regarding medically related topics related to Down syndrome. The site is authored by Len Leshin, M.D., F.A.A.P. who, in addition to offering general pediatric care, is a member of the Down Syndrome Medical Interest Group and is the father of a child with Down syndrome. The site includes printable record sheets based on Down Syndrome Health Care Guidelines. This is one of the most comprehensive, down-to-earth sites regarding Down syndrome on the Web.
LuMind RDS Down Syndrome Research Community
LuMind has a cutting edge online platform for the Down Syndrome Community to access the latest and most accurate information available nationally. This platform will allow you to connect with peers engaging in meaningful medical conversation, see accurate statistics on success with medicines and therapies and get matched to clinical trials.
Down Syndrome Clinic at Children’s Mercy/The Down Syndrome Clinic
A consultative service and screening mechanism for children with Down syndrome ages birth through adolescence. This is done by addressing the medical and therapeutic needs of individuals with Down syndrome.
The Down Syndrome Guild of Greater Kansas City
A non-profit 501(c)(3) organization whose mission is to provide support and resources for individuals with Down syndrome, their families and the professionals who serve them. DSG seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with Down syndrome.
The websites listed in this directory as resources are being provided as a convenience and for informational purposes only. They do not constitute an endorsement or approval by USD 232 of any of the products, services, or opinions of the organizations that operate them. USD 232 bears no responsibility for the accuracy, legality, or content of the external websites or for that of subsequent links. Please contact the external site for answers to questions regarding its content.